Customized Services for hEDS, MCAS, and POTS
I have been providing dietary support for MCAS since 2019, and for hEDS and POTS since 2020. I continue to stay abreast of the latest dietary interventions and recommendations for managing this “trifecta” of disorders.
The needs of each person with Ehlers-Danlos Syndrome (hEDS), Mast Cell Activation Syndrome (MCAS), and Postural Orthostatic Tachycardia Syndrome (POTS) are different, and for the ~60% of individuals who have been diagnosed with more than one of these disorders, which symptoms take priority needs to be factored in. For this reason, an Initial Consultation is the first step. Then, together, we can determine the best approach for providing services under the Customized Nutrition Package at the hourly clinical rate.
Clinical and Personal Experience
As outlined on the Homepage and the About Me page, I understand the “trifecta” of Mast Cell Activation Syndrome (MCAS), Ehlers-Danlos Syndrome (hEDS), and Postural Orthostatic Hypotension (POTS) from both sides of the clinical desk. Almost a decade ago, I was diagnosed with Mast Cell Activation Syndrome (MCAS), and have several first-degree family members with Ehlers-Danlos Syndrome (hEDS) and Postural Orthostatic Hypotension (POTS). Navigating these disorders is not only a clinical interest of mine; it’s a daily reality for myself and members of my family.
Use any remaining time for follow-up.
Want to dive into the research?
Before we meet, you might find these articles of interest.
Questions and Answers
Q: Why is an Initial Consultation required for hEDS, MCAS, and POTS services?
A: Approximately 60% of individuals with these conditions are diagnosed with more than one of them. Because the symptoms of hypermobile Ehlers-Danlos Syndrome (hEDS), Mast Cell Activation Syndrome (MCAS), and Postural Orthostatic Tachycardia Syndrome (POTS) are different for each individual, there is no set package. An Initial Consultation enables us to meet to discuss your specific symptoms and prioritize your digestive or systemic triggers.
Q: How does a “both sides of the clinical desk” perspective affect your care?
A: I was diagnosed with Mast Cell Activation Disorder (MCAD) nearly a decade ago and have first-degree family members living with hEDS and POTS. As a result, navigating these overlapping complex conditions is a daily reality, not only an academic interest. Understanding these disorders from both sides of the clinical desk enables me to provide empathetic, practical, and highly realistic strategies based on the current literature and lived experience.
Q: Can nutrition support manage histamine intolerance or mast cell flares safely?
A: Yes. As part of a medical nutrition therapy plan, structured elimination of bioactive amines, including histamine, helps reduce total systemic mast cell load. The focus is on identifying your current thresholds for bioactive amines so that overall nutritional needs can be met through other foods.
Meet to Discuss Symptoms & Services
The first step in service for those with hEDS, MCAS, or POTS is to book an Initial Consultation.
Get started by clicking the button below.
