Customized Services for hEDS, MCAS, and POTS

reading AGA Clinical Practice Update on GI Manifestations in Hypermobile Ehlers Danlos Syndrome with coexisting Postural Orthostatic Tachycardia Syndrome and/or Mast Cell Activation Syndrome: expert review

I have been providing dietary support for MCAS since 2019, and for hEDS and POTS since 2024. I continue to stay abreast of the latest dietary interventions and recommendations for managing this “trifecta” of disorders.

The needs of each person with Ehlers-Danlos Syndrome (hEDS), Mast Cell Activation Syndrome (MCAS), and Postural Orthostatic Tachycardia Syndrome (POTS) are different, and for the ~60% of individuals who have been diagnosed with more than one of these disorders, which symptoms take priority needs to be factored in.

For this reason, an Initial Consultation is the first step. Then, together, we can determine the best approach for providing services either through Clinical Nutrition Appointments or as a Customized Dietary Package.

Please note, the dietary support that I provide is an adjunct treatment to the various classes of medications that may be prescribed by your doctor or specialist, and which may include specific types of antihistamines (H1, H2), gastrointestinal or blood pressure medications, etc.

Services for hEDS, MCAS & POTS

Since nutrition needs vary widely for individuals with hEDS, MCAS, and POTS, there is no set package.

  • Services are provided through Clinical Nutrition Appointments based on your individual symptoms and clinical needs
  • Services may be combined into a Customized Dietary Package upon an agreed-upon estimate

Learn More About Clinical Nutrition Appointments

 

Meet to Discuss Symptoms & Services

The first step in service for those with hEDS, MCAS, or POTS is to book an Initial Consultation.

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Questions and Answers

Q: Why is an Initial Consultation required for hEDS, MCAS, and POTS services?

A: Approximately 60% of individuals with these conditions are diagnosed with more than one of them. Because the symptoms of hypermobile Ehlers-Danlos Syndrome (hEDS), Mast Cell Activation Syndrome (MCAS), and Postural Orthostatic Tachycardia Syndrome (POTS) are different for each individual, there is no set package. An Initial Consultation enables us to meet to discuss your specific symptoms and prioritize your digestive or systemic triggers.


Q: How does a “both sides of the clinical desk” perspective affect your care?

A: I was diagnosed with Mast Cell Activation Disorder (MCAD) nearly a decade ago and have first-degree family members living with hEDS and POTS. As a result, navigating these overlapping complex conditions is a daily reality, not only an academic interest. Understanding these disorders from both sides of the clinical desk enables me to provide empathetic, practical, and highly realistic strategies based on the current literature and lived experience.


Q: Can nutrition support manage histamine intolerance or mast cell flares safely?

A: Yes. As part of a medical nutrition therapy plan, structured elimination of bioactive amines, including histamine, helps reduce total systemic mast cell load. The focus is on identifying your current thresholds for bioactive amines so that overall nutritional needs can be met through other foods.